How to Arrange Hospice Care: A Step-by-Step Guide for Families
Facing the reality that a loved one may need hospice care is one of the most emotionally difficult moments in life. It’s a time filled with uncertainty, concern, and often grief. Yet, it can also become a moment of clarity and compassion—one in which you help ensure that your loved one is treated with dignity, comfort, and support in their final stage of life.
In the United States, nearly 1.72 million Medicare beneficiaries received hospice care in 2021, according to the National Hospice and Palliative Care Organization (NHPCO). Understanding the steps to arranging hospice care can empower you to make the best possible decisions during this vulnerable time.
Start the Conversation
Initiating a conversation about hospice may seem daunting, but it’s an essential first step. Choose a quiet, private moment to talk, and approach your loved one with empathy and patience. Begin by expressing your concern for their comfort and quality of life. Give them space to share their own thoughts, fears, and wishes. Remember, these discussions often happen over time, not all at once.
Consult with Healthcare Professionals
Hospice care is typically appropriate when a patient is diagnosed with a life-limiting illness and a life expectancy of six months or less. Speak to your loved one’s primary care physician, specialist, or hospital discharge planner to determine eligibility and discuss timing. These professionals can also help you obtain the necessary referral and paperwork to begin hospice enrollment.
According to a study in Health Affairs, patients who enter hospice earlier often report better symptom management and improved quality of life. Don’t wait for a “crisis” moment—early involvement ensures access to the full scope of support available.
Research Hospice Providers
There are more than 4,800 Medicare-certified hospice programs across the U.S., each with its own strengths and specialties. Start by identifying accredited providers through trusted sources like:
The National Hospice and Palliative Care Organization (NHPCO)
The Medicare Hospice Compare tool (medicare.gov)
Local health departments or hospital discharge planners
Ask about accreditation (e.g., CHAP, The Joint Commission), and read reviews or testimonials when available.
Understand Financial Coverage
Hospice care is widely covered by:
Medicare (Part A) – Covers almost all hospice services with minimal out-of-pocket costs
Medicaid – Offers hospice benefits in most states
Private Insurance – Varies by plan, but many cover hospice under major medical
Veterans Affairs (VA) – Provides hospice care for eligible veterans
For those without coverage, many hospices offer charitable care or sliding-scale payment options. Don't hesitate to ask providers about available financial assistance.
Schedule a Consultation
Reach out to a few hospice providers and schedule initial consultations. These meetings allow you to:
Ask questions about the care team and services offered
Learn about 24/7 availability, on-call nurses, and emergency protocols
Understand their approach to pain management, symptom control, and emotional support
Explore any complementary therapies offered (e.g., massage, music therapy)
Clarify how they involve family caregivers and support loved ones
This is also an opportunity to assess the provider’s communication style and determine if their values align with your family’s.
Consider Personal Preferences
Hospice is about more than medical care—it’s about comfort, connection, and respecting the patient’s values. Some hospices offer extras such as:
Spiritual care from chaplains of any or no denomination
Pet therapy or music therapy for emotional healing
Bereavement services that continue for a year after passing
Ask how the care team will tailor the plan to reflect your loved one’s personal and cultural preferences.
Finalize the Care Plan
Once you’ve chosen a hospice provider, work together to build a comprehensive care plan. This plan typically includes:
Pain and symptom management strategies
Scheduling regular nurse and aide visits
Coordination with the primary care physician
Support for caregivers, including respite options
Spiritual and emotional services
Advance care planning and documentation
Maintain open communication with the hospice team. You are an essential part of the care circle, and your voice matters in shaping your loved one’s experience.
Arranging hospice care is an act of love. By taking proactive steps—starting conversations early, consulting with professionals, researching quality providers, and crafting a care plan tailored to your loved one’s needs—you ensure they receive the care, dignity, and comfort they deserve.
Our hospice team is here to walk with you through every step of this journey. Whether you're seeking information or ready to begin the process, we’re committed to providing compassionate, expert support for you and your loved one. Reach out today to learn how we can help.